Showing posts with label my dad's stroke. Show all posts
Showing posts with label my dad's stroke. Show all posts

Saturday, April 25, 2009

the week after.


I lived the week after mom's death like I was flicking a light switch.

I turned the switch on and went to work and oriented the new person who took my position. I smiled at people, laughed.......tried to download the information about my job to my replacement...even felt grateful to be among familiar people who would give me bear hugs.

I'd leave work ...get in the car and turn the switch off.....then I was quiet....exhausted....sad.

The last two months have gone so slowly and so fast at the same time.....heartbreak....pain....they slow the clock down so even a second feels like a year......business...all the financial and legal business....I start making phone calls, pulling out the calculator...look up and hours have flown by.

Today.....trouble....dad is coughing, exhuasted, wincing in pain. He has entered the hospice program....I can not believe it maybe time to go through this again....it has arrived so quickly....time is moving slow again.
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Tuesday, March 17, 2009

Rubber girl

I wake up in the mornings now....not only unsure of what day it is....but also unsure of what will happen....

right now...I've given up on plans....plans were in the old days of my life....were you could say things like...."I'm going to go to work this week" or "this weekend I'm going to clean out the garage" or " I have a dentist appt on Tuesday."

No matter what I plan...or what I think I'm going to do....things are in a constant flux right now....

this week I drove up to Chicago because the plan was...to pick up my son for spring break.....have my daughter come in from Ohio.....and start working on my parent's house....detrashing.....starting to organize things.....even have a real estate agent look over the house.

But the day before I was scheduled to leave....my dad entered the hospital for pneumonia. I was with him till 4am ...so he could get through the emergency room process and get into a room.....then several hours behind I hit the road at 11am....assured that my family there could watch over him for the weekend....

I told my daughter not to fly in.....just Tom and I would work for the week .....and then on Monday.....I received two surreal phone calls.....

One from the hospital at 10am saying my father will be discharged to the nursing facility and the next call at 11am......from the nursing facility telling me the doctor had decided my mother's leg infection was worse and she needed to go to the hospital.

so literally.....my parents crossed each other on the freeway in ambulances traveling to and from the university medical center......

that was bizarre....so bizarre my family down there raised the white flag of surrender and said come back home.....so Tom and I are getting in the car in another hour or so and heading down south....

I simply shrug my shoulders at a 10 hour drive.....make sure I have an audio tape which will occupy me for about 6-8 hours.....adjust the rear view mirror....buckle the seat belt....and go.

My trusty dog Ozzie, who has accompanied me for several of these trips....also jumps in the car without hesitation ....he knows mid-trip an Arby's plain roast beef sandwich appears in a paper bag to gulp down.....a couple of exciting rest stops with the smells of hundreds of dogs are waiting for him ...and finally....when we're almost home...he knows if he stares at me licking my vanilla ice cream cone from McDonald's so hard ....I'll give in and give him half... What more could a dog ask for?

I feel like I'm turning into rubber band.....flex....change positions...cry...laugh....sleep here ....sleep there.....rethink this ...rethink that.....get rid of those thoughts....soak in new thoughts..... assess..... prioritize....what needs to be done right now?

And apparently what needs to be done right now....is hop in a car...and drive back home.

Okay...where's the car keys?

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Thursday, March 12, 2009

More.....

I am sitting here waiting for my phone to charge.

I will need it today.

I woke up....and for the first time in many weeks actually slept through the night. Although there is much stress with my parent's condition....I visit once or twice a day....my family visits also..... we have an eye on them in terms of their care and comfort. Everything is easier to handle when you are at home in your familiar surroundings.

I even had a chance to sit with my parent's cat for a while this morning...she is recovering in our bathroom. We had her spayed and declawed....she lived mostly in a cage by my mother's recliner in the den....a choice showing my mom's deteriorating mental status rather than true cruelty.

She doesn't know much about being a cat or getting lots of love and attention....so we decided to give her a chance in our household....I sat down on the plush carpet near the sink and she curled up on me and purred..... I felt happy and hopeful that there was a small part of the world coming together.

Then the phone rang....and the nurse from the nursing home called to talk to me. "We believe your mother had a slight stroke this morning."

"My mother?"

"Yes....it's mild but she is having difficulty using her right hand....and is wobbly on her feet. Her vitals are stable, we called the doctor."

I sat for about 5 minutes...trying to digest this....my mother had a small stroke.

I visited her late last night...she was already in bed and I tucked her in and kissed her....fully realizing our role reversal....me leaning over to kiss her good night....me tucking her in bed.

Her dementia may have been caused by multiple small strokes...this episode....might be a bigger manifestation of smaller events which have happened over the last couple years.

Still I am in awe at the slippery complicated slope we are on......

how everything is cascading....how there's no plateau yet....just new challenges to face.

A few more minutes.....a bit more charge in the cell.....and off I go.
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Sunday, March 08, 2009

Crossing the threshold.............


I feel like I've crossed some type of threshold the last few weeks.....like my heart and soul and character have moved into a new place.
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I often feel I've had some type of Bar Mitzvah.....where I've walked over to the podium and proclaimed to the world that I am now an adult.....a particular type of adult.....an adult that has passed through bonding and babies and is now dealing with endings and dying.
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I feel the circle of life in a unique way.....I am responsible for my children....and I am responsible for my parents.
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I sense time and generations.
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I am acutely aware that I span two different shores.....that I have seen and known my children's great grandparents.....and that my own children are forming bonds that may lead to marriage and babies of their own.
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I have an intense desire to remember and write down what I've seen and heard....because as my father's breathing worsens and his body thins with only tube feedings....I am fully aware his voice is gone... and I am the only one left to write down who he was and what he did with his life.
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It feels like such a solemn responsibility.....to gather the details....to spin the stories.....to push what I know of him forward to his grandchildren and perhaps their children.
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I can see how you lose generations.
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How so little can move forward on one level and how much moves forward on another.
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Tonight my hub scraped my dad's inner cheeks for his DNA....for a piece of his code.... for genealogy testing.
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Dad was always fascinated by these tests and I realized if we didn't do this now.....we would lose a portion of who we are.
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This place I am in now.... feels a bit sacred.....I have reached a point....where I can sense the basics of wisdom.....I can look in each direction and see the feelings, trials and challenges of both the young and the old.
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There should be some kind of ceremony for arriving at this point....some kind of feather you could wear in your hair or tattoo to mark you.....some party you should give for yourself to celebrate surviving and morphing into a bridge between generations.
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I only pray that I am a strong bridge....like the beautiful ones I crossed in the Bay area of California....graceful....strong ....but able to sway and dance with wind.
Damn....I feel so grown up.
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Sunday, March 01, 2009

A change of Positions.....

My parents house is dark and quiet except for the little orange night light on the kitchen table.

There's a couple of inches of fresh white fluffy snow .....creating this insulated.....womb-like feeling.....around the house.

My dad's wind chimes play sweetly outside the window......such pretty music seems to belong to summer instead of a cold winter night.

My parent's made it....they are safe and sound in a facility near my house....but my dad is not very responsive.....talk of physical therapy and speech therapy maybe just talk....not reality.

My dad is aware of people for short periods of time during the day ...he squeezes my hub's and son's hands.....and tries to say something with a mouth that will not obey him.

My mother is bored and wants to take a "streetcar" home....she has two quarters in her purse and constantly tries to bum another quarter from the staff so she can hit the road.

I feel like a thousand pound weight has been lifted off my shoulders....now that my parents are secure...but there is still so much to do .....with the house .....and the stuff of 40 years.....that I curl up mentally and wonder if it will all be settled some day.

I'll be here for a couple more days before I head down south....their finances ....such a mess I need a few more business days to visit banks and other financial institutions.

I have spent the entire day de-trashing my parent's kitchen....but I'm only half done .....with many more cabinets to explore.

My parents saved everything. In a dainty tea cup, I found my mom's hospital admission ID bracelets from 6 years ago......a large coffee mug stored every extra button from every blouse or shirt for years........6 giant soup ladles and 10 casserole dishes were cramped in another cabinet...even though my mother never cooked.

I talked to my cousin in Tampa, Florida tonight. She called my mother frequently.....between my story of my parents and other people's stories of my parents.....I am beginning to piece together who they were and how they lived their life...you would think a child would know their parents.....but that's not always the case.

My cousin tells me my mom cried and told her I never called and visited her.....I tell my cousin how my mother in two years never phoned me and how she told me not to visit her.....My cousin says my mother wondered why I hated her.... I tell my cousin I wonder why my mother hated me.....

I visit a friend of my parents to update her on their status..... she grabs my hand and tells me she has kept a secret for my mother for many years.

"You know your mom and I have been friends since kindergarten."

"Yes yes..."

"Well I'm going to be 88 in March"

I'm not sure why she is telling me this....until a bell rings and the logic part of my brain says....if my mother and her friend attended kindergarten together they are the same age.

"You're 88????"

"Yes ......and so is your mother."

"What?"

"But all her records say she's 80......all her documents say the same birth year."

"Your mother was clever and fixed them. This was before computers....you could hide things. She never wanted you or anyone to know your father had married an older woman. That's why you're an only child....your mother had you late in life."

"But...but...so what if she is older?"

"It was important to her..... even your own family kept quiet about it."

My mother 88 years old.

She looks damn good.....and always has......

I'm confused but.... it explains a lot.....my mother's constant irrational fear my dad would leave her for a younger woman....the thousands of jars of face creams......a basement full of exercise machines before any one had exercise machines.

My cousin warns me I will find out a lot of things about my parents.....she is ten years older than I am.....and perhaps knows more........there's a long pause between us .......she adds nothing.

It seems like my parents and I have switched places....they are safe and secure now......and I am the one who is disoriented and faltering.
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Friday, February 27, 2009

Hoping to see the light.........

I'm sitting here with a knot in my stomach.

It's going to be here for another 9 hours.

At 4:30 in the morning, I placed my parents....in a creamsicle orange and white ambulance and sent them 700 miles south to a nursing facility near my house.

My dad was discharged from the hospital on Tuesday and within 24 hours of being in a skilled nursing facility.....he was taken to the emergency room because he pulled his feeding tube out and later was found on the floor less than an hour after he returned to his room.

Scared and angry....and fearing the facility ....not the consequences of his stroke would kill him.....I called the social worker at a nursing home we eventually wanted to settle my parents in and pleaded with him.....find a way to get my parents down now.

Hours later.....there was a plan..... I grabbed my purse, my cellphone, my keys and my dog and drove back to Chicago.

I went to the each of my parent's facilities and signed papers and told my parents about the arrangement---an ambulance ride, a good facility near my home....and they could be together again.... share the same room. After 60 years of marriage.....I felt this was important and vital to their care and well-being.

They seemed happy.....my dad laughed when I told him he was headed down south....and my mom....well... she just wanted to be near my dad.

When the ambulance pulled away in the dark and rain.....I cried as I waved goodbye.....I cried because I hoped they would have a safe journey and because I have pulled them away from the city they were born in....the house they lived in....and the few friends they still have.

But even camped out here at their house, I found I couldn't manage the situation. I didn't know the area, the facilities, the reputations.....I didn't have connections....and Chicago is so big....I felt like I was a broker in an impersonal elderly meat market.....where there are thousands of little old folks like my parents.....needing help....needing care.....with scattered families.....and small sad stories.

I pulled them away but I also pulled them into something....a community.....which holds me and my family...our connections....and a solid university system ....to manage their health care.

My hub and son will meet them when they arrive .....I'll stay up here for a few days.....and begin to settle their house and estate.

I'll bring their TV and some small furniture down....and in a couple more weeks I'll haul down their favorite easy chairs....the pictures which hung on their bedroom walls .. the god-awful mechanical singing birds my mother seems to adore.....my dad's radio.

It is the beginning of a plan....my feeble attempt to stabilize their lives and mine............I feel an odd kinship to people who have gone through an earthquake.....oh the longing for the ground to be stable and for everything to stop shaking.

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Tuesday, February 24, 2009

the rollercoaster

I want out.

I want to get off the fucking roller coaster.

Up and down........there is no level ground.

Things change by the hour.



  • I hold my father's hand and tell him I cooked up the turkey bacon in his refrigerator and have a massive heartburn....he laughs.....his blue blue eyes sparkling.....

  • I get a phone call hours later that my father pulled out his IV, the tube into his bladder and the feeding tube they just placed in his stomach in the operating room.


  • I 'm overjoyed to receive checks from the bank....yipeee I can pay my parent's bills.

  • I talk to a bank representative and discover my parents may not have filed their income tax for the last two years.


  • I leave Chicago Monday for a short stay at home....my dad has restraints on to protect the newly placed tubes.... I know they can't transfer him to a rehab unit in a nursing home until he is free of restraints for 24 hours....

  • The hospital discharge coordinator calls me unexpectedly Tuesday and states he's ready for discharge.....I fuss and fight but am assured he has been fine without restraints....a couple of hours ago...the rehab unit calls....they're transferring him back to the hospital tonight.....he pulled out all his tubes.


  • I find my mother's beloved diamond rings.

  • I discover dad has carpeted the crawl space and there are at least 500 boxes stored under the house.


  • I've installed broadband at my parent's house so I can now access the Internet.

  • I discover I don't have the right link and authorization code and can't open my work email.


  • I find social security checks scattered around the house and deposit them.

  • I discover my parent's investment in stocks has totally tanked and a major part of their assets are gone.


  • We find an excellent care facility that would accept mom and dad and allow them to stay in the same room.

  • I realize there's no way I can work full time and resign from my job.


Up and down....back and forth.....

for every advance.....a retreat......



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